November 5, 2009 by

(Past) Time to Visit the Doctors

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Categories: Fibromyalgia, Tags: , , ,

Apparently I’m a long time overdue for a routine look over, so I actually remembered to schedule one, even more importantly I remembered to write it down. Unfortunately it’s in the morning, you’d think that they’d know to schedule a person with a sleep disorder for something later, but you take what you can get. It’s been an eventful year, so that hasn’t helped me remember the little things, like medical appointments. In the past year I’ve lost two grandparents, Kim still has ongoing liver problems, Kas got married and we almost lost Pepper, poor little guy.

But, on to the rundown…

Persistent Pain in muscles and ligaments:

  • I’m up to around 8 Tylenol Arthritis a day on bad days, 4 on good ones, I would usually like to take more but you can only take so much of that before it starts to screw you up. The laundry list of where it hurts is long, back, shoulders, neck, hips, legs, knees and feet for starters, and we can’t forget the hands of course.
  • I’m having a harder time with walking than I care to admit, I used to use the cane to help ease the pain in my back from standing or walking too long, but the distance I can go without it has dropped. My feet try and give up first, it goes up into my knees, hips and then into my back. The more tired I get the worse it hurts and if I don’t have the cane I get an ugly stoop.
  • The shiatsu chair helps with the back and soaking in a really hot bath do as well, but I have to watch the soaking, if I feel a little itchy anywhere when I decide to soak I get itchy and rashy.

Unrefreshing Sleep, Poor sleep:

  • Sleep, as always, is a major problem. It’s a bitch getting quality sleep, not long after I get to sleep it seems like it’s time to get up. I don’t normally get a lot of deep sleep, I wake up tired in a shredded bed but I can’t go back to sleep because I stiffen up if I don’t get up and move around. I also have to vary how I sleep a lot, sometimes I need the floor because it helps my back, sometimes I sleep on the couch because the vertigo kicks in and I have bedspins and sleeping almost sitting up helps that. I’ve tried the over the counter sleep aids, but they just make me feel hung-over.

Fatigue (mild or totally drained feeling) :

  • I haven’t had anything like energy in months, I used to be more cyclic, I’d feel good for about a week, then rundown for 2-3 weeks, then thrashed for a few weeks, then a couple weeks of rundown and then better again. The feel good times are not in evidence, my better times now are a bit below the rundown times I used to have and the bad times make me not want to get off of the couch. I refuse to be stuck in bed or on a couch though. Come to think of it, I haven’t had a “not too bad” sort of day since September.

Recurrent Headaches:

  • Migraines are back up, I’m looking at one a week, which adds the pre- and post-migraine funk to everything else. I’m getting more ocular migraines now, lots of flashing light that really screws with my vision, but no pain. But, if I get 4 migraines a month then at least 2 of them will be the painful, hating life variety.

Morning Stiffness:

  • Morning is the worst, I go to bed stiff and sore and wake up the same way, actually a little worse because until I stretch out I’m Quasimodo. I creak, pop, crack and snap until I’m fully stretched out, and morning is prime shiatsu time.

Cognitive/Memory Impairments:

  • My memory is really working on my last nerve, I have enough post it notes on my desk to look like yellow snow, and we all know why that’s bad. Too many things slip through the cracks right now, I used to be able to do everything from memory but now I can’t trust it. The fibrofog is miserable, it can a few hours in the morning before my head is on straight. That’s why I type these things out, so I can look back and remember what to talk to the doctor about.

Irritable Bowel Syndrome:

  • This is just unpleasant. Its either hard as hell to go or my butt thinks it’s a fire hose. Sadly, when I’m plugged up and my gut is cramping a cigarette really seems to help calm down my gut and get things moving. Tomatoes, cabbage and a whole lot of other favorite foods are off the diet. Its an endless cycle of can hardly go, hard to go, and can’t stop going with gut cramping gas thrown in for fun.

Environmental Sensitivity:

  • I can’t stand still air, I always have a fan blowing on me even when I’m cold. Heat makes me feel queasy, too long in the sun and I can get rashy, and cold stiffens me up. Noise and light, as always are irritations.

Irritable Bladder:

  • It sort of feels like somebody punched me in the pubic bone, an inch or so above my junk. It hurts, I feel like I have to pee all the time and I’m pissy about it, pun intended, get over it. One of the symptoms is also painful intercourse, yeah did you see where it said I felt like I was punched above the junk? You try and get a romantic mood going with that happening.

Numbness and Tingling Sensations:

  • I have a hell of a time getting comfortable to sleep because I wake up with my arms asleep from sleeping on them funny. That is annoying as anything, and if I don’t move my legs often they do it too.

Muscle Spasms/Twitching:

  • Legs and neck, annoying and makes me look a little spastic and I hate it.

Dizziness:

  • Vertigo sucks! I’ve had leg cramps from holding down the brakes because it felt like the truck was moving, it can get really bad when the vehicle next to me moves in my peripheral vision, it feel like I just moved and when I consciously notice what is going on I ease up. I have to stand up slow, I’ve forgotten a few times and wound up on the floor.

Impaired Coordination:

  • I’m amazed I haven’t maimed myself, but apparently moving slow has a benefit after all. When I move quick I find that more often than not control becomes optional. Its also bad when I’ve walked a lot and I don’t pick my feet up as much. Lots of dropped things, I’m amazed my phone has lived this long. I really notice it when I type, my fingers tend to hit random keys and I find myself looking at sentences in a strange unknown language.

Chest Pain:

  • The same thing that had me in the ER a few times being checked for heart attacks, the chest tightens up and I breathe funny and a pain in the chest. It normally means I’ve overdone it, but it can come on at random.

Intolerance to Heat or Cold:

  • Heat makes me feel sick, cold makes me freeze, I can dress for the cold at least. Fingers and especially toes get cold.

Frequent Abdominal Pain:

  • Big huge nasty granny knots, and the only way to untie them will clear a room and offend the dog, and even that only works half the time.

Breathlessness:

  • Randomly, I can’t get my breath for no reason, and heaven forbid I exert myself without pacing myself very slowly, it usually comes when my chest tightens.

Frequent Eye Prescription Changes:

  • This in addition to ocular migraines, for months now I’ve had a problem reading small print and have to take off my glasses or do the “long arm” method. I also have occasional problems with night vision.

Dry Eyes and Mouth:

  • Gum helps, but there are times when my tongue sticks to the inside of my mouth, some medications have made this worse.

Skin Rashes:

  • Itching and bitching, thanks for asking, but only a few rash bumps that pop up at random. By “at random,” I mean at random. I’ve woke covered in hives or just a very faint rash and itching head to toe.

Sinus and Allergies:

  • My sinuses are always irritated with me, congestion, runny nose or both, and hayfever season is miserable.

Subjective Swelling:

  • Hands, feet and ankles, no telling when it will happen but I’ve barely managed to get my wedding ring off a time or two so I quit wearing it. Usually at the end of the day my feet and ankles are swollen, sometimes all the way up to my knees.

Mood Swings/Disorders:

  • Definite moodiness, I can go from massively grumpy to depressed and back in the course of a few hours. Then again, at other times I just get this weird mood when I hurt badly and try and make a joke out of everything, it’s really annoying when I catch myself doing that.

© 2009, Tim Boothby. All rights reserved.

I was born in the Midwest and grew up in Iowa, Missouri and Texas. I guess you could say I had an eventful childhood, at least it was a helluva lotta fun! I enlisted in the Air Force in 1984 and retired in 2007. I saw a whole bunch of the world and racked up a lot of experiences in the process. Now I'm retired and enjoying life to the fullest!

2 Responses to (Past) Time to Visit the Doctors

  1. Lane Chaffin

    Some of the symptoms sound like sleep apnea. I dunno. I never heard of Fibrowhatever..hope you get better. Cool site you’ve got here, Tim.

    • Tim Post author

      Quite a few are the same, they had to screen me for sleep apnea as part of the diagnosis in fact. Part of FM is a sleep disorder which makes many of the symptoms match up. Glad you like the site, thanks for stopping by!

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